ZEROHour Newsletter: April 2022
Urgent: Your Voice is Needed to Increase Research Funding
March was a big month for prostate cancer advocacy. ZERO Summit Advocacy Day on March 8 was very successful with 140 advocates from 39 states participating in 168 meetings with legislators. In addition, a major victory was won in Illinois where HB 5318 passed the Illinois General Assembly. It will soon be signed into law to ensure that prostate cancer screening is available for high-risk men without co-pays or other cost sharing.
The month of April is a critical month for federal prostate cancer research and you can make a huge difference with just a minute of your time. The Prostate Cancer Research Program (PCRP) is one of the most impactful federal prostate cancer programs. By sending an easy, "one-click email" to your legislators, you can help increase funding for the PCRP from $110 million to $120 million for Fiscal Year 2023. The more Congressional signatures we get on the letter in April, the more of a chance to get the funding, which means more treatments and diagnostics developed, and most importantly, more lives saved.
The letter closes on April 22. Don't wait, click on the button below to let Congress know the importance of this funding!
Finally, for those interested in learning more about ZERO's advocacy efforts, we will be holding an advocacy town hall on May 18, where you can learn what is happening legislatively and how you can do your part to end prostate cancer. For more information, email firstname.lastname@example.org.
New Resources: ZERO Summit Videos
The 2022 ZERO Prostate Cancer Summit was a great success with more than 1,800 registrants from all over the world. Good news, in case you missed it, you can now view all the Summit videos. Please visit ZERO's YouTube channel to see the many Summit educational sessions and the inspiring Bold for Blue Awards ceremony. There is something for everyone from newly diagnosed to survivorship and for those who are caring for a loved one.
Join a Webinar
April 21, 11:00 a.m. Eastern Time
PSMA PET Imaging for Prostate Cancer
Brought to you in partnership with Lantheus with Dr. Tomasz Beer on Facebook Live
Click to Join at Start Time/Date
April 21, 6:00 p.m. Eastern Time
Presentation: The Fat Side of Prostate Cancer
with Dr. Massimo Loda, David D. Thompson Professor and Chairman, Pathology and Laboratory Medicine, Weill Cornell Medicine, presented by Us TOO New York
April 22, 11:00 a.m. Eastern Time
Your Voice in the Future of Active Surveillance
with Dr. Laurence Klotz, Dr. Peter Carroll, Dr. Peter Albertsen, and Dr. E. David Crawford, presented by ASPI, AnCan, the Prostate Forum of Orange County, Prostate Cancer Support Canada, the Walnut Foundation, and other organizations
April 28, 6:30 p.m. 7:30 p.m. Eastern Time
2022 American Society of Clinical Oncology Genitourinary Cancers (ASCO GU) Symposium Research Updates
with Dr. Alexandra Sokolova, Assistant Professor of Medicine, Division of Hematology/Medical Oncology, School of Medicine, Oregon Health and Science University
Special Two Part Series Register for Either One or Both
Brought to you in partnership with Boston Scientific
May 10, 7:00 p.m. Eastern Time
Signs, Symptoms, and Treatment Options for Erectile Dysfunction and Incontinence (Part 1 of 2)
with Dr. Michael Granieri, Urologist, Conrad Pearson Clinic
May 19, 7:00 p.m. Eastern Time
Prostate Cancer Treatment Options and Risk Mitigation for Radiation Therapy (Part 2 of 2)
with Dr. Albert Chang, Radiation Oncologist, UCLA Health
May 11, 1:00 p.m. - 1:30 p.m. Eastern Time
How to Play an Active Role in Your Prostate Cancer Treatment
with Dr. Atish Choudhury, presented by Patient Empowerment Network
What prostate cancer support and education events are happening this month? Check the calendar! The Prostate Cancer Calendar web page is a resource for the entire prostate cancer community. If you are looking for a prostate cancer event, please check the calendar. If you have a support group, webinar, seminar, or other prostate cancer event that will benefit the community, you can post it right to the calendar.
Register for a ZERO Run/Walk in Your Community
Registration is open for the 2022 ZERO Prostate Cancer Run/Walk series. Sign up for one of 46 in-person events that are currently scheduled all over the country, with the first taking place on May 15 in Los Angeles. You will love the support and camaraderie that you will find at the Run/Walk events. All money raised as part of these events will go to help those affected by prostate cancer.
First Run/Walk Events in May and June:
Sunday, May 15, 8:00 a.m. Pacific Time
Greater Los Angeles Area Run/Walk
Saturday, May 21, 9:00 a.m. Central Time
Saturday, June 11, 8:00 a.m. Central Time
Sunday, June 12, 9:00 a.m. Eastern Time
Saturday, June 18, 8:00 a.m. Eastern Time
Capital Area Run/Walk
Saturday, June 18, 9:00 a.m. Mountain Time
Salt Lake City Run/Walk
Saturday, June 18, 8:00 a.m. Central Time
Sunday, June 26, 8:45 a.m. Pacific Time
Sunday, June 26, 9:00 a.m. Eastern Time
Rockland County Run/Walk
Tee-Off Against Prostate Cancer
Two ZERO Prostate Cancer Tee-Off events in Edison, NJ and Alpharetta, GA, attracted more than 200 participants to raise over $70,000 to help those affected by prostate cancer.
Sign up to be a part of the next Tee-Off events. There's no pressure to have a good golf swing, it's all about everyone having fun. Grab a club and take a swing at the micro-chipped balls to see how many points you can rack up. All proceeds benefit prostate cancer patients and families. If you are in the area, be sure to register for these upcoming events:
May 1, 2:00 p.m. Eastern Time
Sunday, May 15, 2022, 2:00 p.m. Eastern Time
June 6, 7:45 a.m. Central Time
The Legacy Golf Club Des Moines
June 16, 5:00 p.m. Central Time
Progress in Prostate Cancer Research
Advancements in prostate cancer research provide hope for finding a cure and lead to important new discoveries. Progress in Prostate Cancer Research is a ZEROHour feature that includes some of the latest research from the Prostate Cancer Foundation (PCF). This month, read Highlights of ASCO GU 2022, Part Two including: Decipher Gene Test May Help Personalize Care for Patients with Intermediate-Risk Prostate Cancer; SPOTLIGHT Study Results Suggest That a New PSMA Imaging Agent is Effective and Safe; and 2012 Recommendations Against PSA Screening Linked to Slower Decline in Prostate Cancer Death.
Read Doc Moyad's "No Bogus Science" Column
For over 15 years and almost 200 consecutive columns, Dr. Mark A. Moyad of University of Michigan Medical Center, Department of Urology has volunteered to write for Us TOO's Hot SHEET newsletter with the hopes of offering some very practical advice to improve health outcomes. In the latest issue, he looks at an exciting new study on the importance of exercise for a healthier mind, body, and spirit for those with prostate cancer, and their partners.
Biomarkers and Prostate Cancer: Your Questions Answered
What is a biomarker?
According to the National Cancer Institute, a biomarker is a biological molecule found in blood, other body fluids, or tissues that is a sign of a normal or abnormal process, or of a condition or disease. A biomarker may be used to see how well the body responds to a treatment for a disease or condition.
Is biomarker testing the same as genetic testing?
No! Biomarker testing is not the same as genetic testing. Genetic testing tells you which genes you have inherited, or have been passed on to you by your parents. On the other hand, biomarker testing looks for mutations in genes that could drive cancer growth or help predict how your prostate cancer might behave. Biomarker testing may also be called tumor testing or comprehensive genomic profiling.
Why is biomarker testing important for prostate cancer?
It's an exciting time for prostate cancer treatment! Biomarker testing is transforming prostate cancer care and treatment by providing patients and their treatment teams with a vast amount of information on the genomic mutations that drive cancer growth.
How could biomarker testing impact how I choose my prostate cancer treatment?
The results of your tumor testing or biomarker testing could impact your treatment decision. The mutations and other biomarkers that are found in your tissue sample might tell your doctor if a targeted therapy or immunotherapy might work for you.
Be sure that you know all of your treatment options. Talk to your doctor about whether or not biomarker testing or comprehensive genomic profiling might be right for you.
(This content is provided in partnership with Foundation Medicine).
Virtual Us TOO Support Groups
ZERO/Us TOO has virtual prostate cancer support groups that continue to meet regularly and host guest speakers. These meetings can be accessed by phone or by internet, and can be attended from any location.
» Find a support group.
Meet Darik Pearson
In 2020 at the age of 48, Darik Pearson was diagnosed with stage IV metastatic prostate cancer. Last year he set up a Facebook fundraiser for ZERO to celebrate his birthday where he raised over $11,000 and set the record for the largest amount to be raised by a Facebook birthday fundraiser at ZERO. Darik says, "I am happy that I was able to use my platform to raise money and awareness to hopefully help eradicate this awful disease." Darik was recently welcomed to the Champions family. We are inspired by his passion and willingness to share his experience to make a difference for other patients and families. » Create a Facebook Fundraiser Like Darik
Experiencing Cancer-Related Anxiety?
If you are experiencing symptoms of anxiety and stress related to cancer, you may qualify for Blue Note's Restore Study. By joining this study, you will get access to a mobile-app-based investigative digital therapy over 12 weeks intended to manage cancer-related anxiety and stress symptoms. Earn up to $200 for participating. You might qualify if you have a stage I, II, or III cancer diagnosis, you have undergone treatment sometime in the last 6 months, or have planned future treatment and/or, you are experiencing cancer-related anxiety and/or stress symptoms. The Restore Study is investigating two digital therapeutics for the physical and mental health of cancer patients. » Learn More and See if You Are Eligible
(This content is provided in partnership with Blue Note Therapeutics, Inc.).
Help Us Better Understand Patient Needs
Researchers at Duke University are partnering with ZERO and Pfizer Oncology to better understand the needs of prostate cancer patients. Take the survey to help address possible gaps in patient education, goals for treatment, shared decision-making, and access to care. Patient insight will help build programs, develop initiatives, and improve patient access in order to produce better outcomes for all people impacted by prostate cancer.
» Click Here to Take the Survey
This newsletter is brought to you in partnership with Advanced Accelerator Applications.