ZEROHour Newsletter: May 2022
For a Limited Time, YOU Can Double Your Impact to Help Patients Like Ted
More than 268,000 new prostate cancer diagnoses are expected this year, leaving thousands of patients in urgent need of support. Ted Healy, an Oregon-based husband, father, and advanced-stage prostate cancer patient, faced the heartbreaking decision of paying for his treatments or paying his bills. Because of the generosity of people like you, Ted connected with a ZERO360 case manager who helped him secure financial assistance for his costly, yet lifesaving, treatment plan.
Stand with patients like Ted who desperately need your help. Your support will help offer direct emotional support, financial assistance, and other critical support resources. Give today to help unlock a $200,000 match to double the impact for Ted and many other struggling patients who are on the brink of despair.
Your Record-Breaking Advocacy Efforts
With federal appropriations season in full swing, the ZERO advocacy team is working hard to ensure that the Prostate Cancer Research Program gets more federal funding. You may have gotten several action alerts from us about this program, and everyone's hard work paid off. In the House, the Dear Colleague letter supporting a $10 million increase for the PCRP got 150 Members of Congress to sign on. That is the highest number of signatories for this letter in a decade. In the Senate, we got a total of 22 signatures, which is over 1/5 of the Senate and our highest number ever. None of this could have been done without every one of our fantastic advocates who emailed their representatives in Congress!
But there is even better news. This month, Congressman Greg Murphy, MD (NC-03) introduced H.R.7750, the Prostate Cancer Community Assistance, Research and Education Act of 2022. Also known as the PC-CARE Act, it would create a coordinating committee to ensure that the various government agencies involved in prostate cancer research are using federal funding effectively and moving us toward a cure. To tell your Member of Congress to support this bill, please click on the button below:
Register for a ZERO Run/Walk in Your Community
In-person ZERO Prostate Cancer Run/Walks are BACK! Register today for one of our 46 community events. There is no cost to attend.
The series kicked off last week with events in Greater LA and Kearney. It was fantastic to see participants, teams, sponsors, and supporters back in action at these events.
There are seven more spring Run/Walks taking place next month. You will love the support and camaraderie that you will find at these events. All funds raised will go to help patients and families in need.
Saturday, June 11, 8:00 a.m. Central Time
Sunday, June 12, 9:00 a.m. Eastern Time
Saturday, June 18, 8:00 a.m. Eastern Time
Capital Area Run/Walk
Saturday, June 18, 9:00 a.m. Mountain Time
Salt Lake City Run/Walk
Saturday, June 18, 8:00 a.m. Central Time
Sunday, June 26, 8:45 a.m. Pacific Time
Sunday, June 26, 9:00 a.m. Eastern Time
Rockland County Run/Walk
Tee-Off Against Prostate Cancer
Sign up to be a part of the ZERO Prostate Cancer Tee-Off. There's no pressure to have a good golf swing, it's all about everyone having fun. Our recent Miami Tee-Off raised $25,500 and more than 115 people participated, thanks to Champion Susie Schlernitzauer who led the effort.
All proceeds benefit prostate cancer patients and families. If you are in the area, be sure to register for these upcoming events:
June 6, 7:45 a.m. Central Time
The Legacy Golf Club Des Moines
Presenting Sponsors: Urology Center of Iowa and Kia
June 16, 5:00 p.m. Central Time
Presenting Sponsor: Texas Oncology
Join a Webinar
May 24, 12:00 p.m. Eastern Time
Precision Medicine and the Future of Prostate Cancer Treatment
Facebook Live with Dr. Kerry Schaffer, Assistant Professor, Hematology/Oncology, Vanderbilt School of Medicine
Presented in partnership with POINT Biopharma
Click to join May 24, 12:00 p.m. Eastern Time
May 26, 1:00 p.m. Eastern Time
Advocacy Town Hall Webinar: What's Happened Since the Summit
with Ali Manson from ZERO and Susan Sweat from Cornerstone Government Affairs
May 31, 8:00 p.m. Eastern Time
Optimizing Sleep, Exercise, and Nutrition in Prostate Cancer
with Dr. Stacy Loeb, Manhattan VA, and Dr. Justin Gregg, UT MD Anderson
Presented by AnCan
June 15, 2:00 p.m. Eastern Time
Facebook Live with Rob Finch, Certified Genetic Counselor, Myriad Genetic Laboratories
Presented in partnership with Myriad Genetics
Click to join June 15, 2:00 p.m. Eastern Time
June 22, 5:30 p.m. Eastern Time
Prostate Health: Early Detection, Treatment and Resources You Should Know
with Dr. Alexander Engelman, Medical Director of Radiation Oncology at Florida Urology Partners
Presented in partnership with Tampa General Hospital Cancer Institute and Janssen
In case you missed these events, video is now available for:
PSMA PET Imaging for Prostate Cancer
with Dr. Tomasz Beer
Brought to you in partnership with Lantheus
View the video
2022 American Society of Clinical Oncology Genitourinary Cancers (ASCO GU) Symposium Research Updates
with Dr. Alexandra Sokolova
View the video
What prostate cancer support and education events are happening this month? The Prostate Cancer Calendar web page is a resource for the entire prostate cancer community.
New Resources: Targeted Therapy
Targeted therapy for prostate cancer identifies or "targets" a particular genetic mutation in the tumor to interfere with the specific molecules that drive the growth of the tumor. A targeted therapy is a form of personalized cancer treatment, or precision medicine, and is often associated with fewer side effects than other treatments. The latest brochure on targeted therapy and precision medicine outlines new treatments and advances.
This content is provided in partnership with POINT Biopharma.
Get Between the Sheets
The bi-monthly Between the Sheets column provides a platform to help men and women by providing answers to questions about sexual health and intimacy challenges that can result from prostate cancer treatment. In this issue, Dr. Anne Katz, Certified Sexuality Counselor and Clinical Nurse Specialist at CancerCare Manitoba, addresses a question from a prostate cancer survivor who, after undergoing a prostatectomy, is concerned that he leaks urine during sexual activity.
Read Doc Moyad's "No Bogus Science" Column
For over 15 years and almost 200 consecutive columns, Dr. Mark A. Moyad of University of Michigan Medical Center, Department of Urology has volunteered to write for Us TOO's Hot SHEET newsletter with the hopes of offering some very practical advice to improve health outcomes. In the latest issue, he looks at the need for men to get enough calcium, the dangers of too much calcium, and the benefits of DEXA imaging - all very important considerations, especially for men undergoing androgen deprivation therapy.
Progress in Prostate Cancer Research
Progress in Prostate Cancer Research is a ZEROHour feature that includes some of the latest research from the Prostate Cancer Foundation (PCF). The American Association for Cancer Research Annual Meeting 2022 was held in New Orleans in April. In this month's column, we highlight two new potential targets for prostate cancer therapy that were discussed at the meeting. Read A New Approach to Targeting the Androgen Receptor in Advanced Prostate Cancer and "Internal Clock" Gene as a Potential Target for Prostate Cancer Therapy from PCF.
Join Other Fundraising Events
Keith Casamento is a ZERO Champion who has stood by his wife Athena during her dad Deno's brave fight with prostate cancer. Keith introduced the online show, Cooking with Keith, to raise awareness about prostate cancer and fundraise to help patients. There are two Cooking with Keith online video segments this year.
June 5, 4:30 p.m. Eastern Time:
Lamb flatbreads and veggie salad (the flatbreads can be vegan or vegetarian)
July 10, 4:30 p.m. Eastern Time:
Pasta with lamb ragu
To join the segments, make a donation ($25 suggested) at https://zerocancer.org/cooking-show and you will be sent an email with the Zoom link to use at the date and time of the event.
At another exciting June event, ZERO will be the charity partner for The Lowcountry Open Kingfish and Offshore Tournament in Charleston, South Carolina. The tournament brings together anglers from around the Southeast to compete on June 18. The Lowcountry Open Captain's Party will be held on June 16 and will feature fishing industry vendors as well as healthcare organizations with a focus on men's health and prostate cancer awareness. For information visit www.thelowcountryopen.com or contact Matt Miller at Matt.Miller@Zerocancer.org.
Virtual Support Groups
ZERO/Us TOO has virtual prostate cancer support groups that meet regularly. These meetings can be accessed by phone or by internet, and can be attended from any location. » Find a support group.
The Black Men's Prostate Cancer Initiative Support Group will be adding another virtual meeting. Starting in June, the group will meet every second and fourth Monday of the month. If interested in participating, please fill out this form.
Meet Juan Batres
ZERO Champion Juan Batres has been involved with ZERO since his father Enrique passed away in 2014 after a two year battle with an aggressive prostate cancer. Juan and his wife are avid runners and he has been a part of Team ZERO twice for the 2018 NYC Marathon and the 2019 Chicago Marathon. He has also participated every year in the LA Run/Walk to raise money and awareness for those affected by prostate cancer. Thank you to Juan for being such a special part of the ZERO community. » Read Juan's ZERO blog post.
Biomarkers and Prostate Cancer
According to the National Cancer Institute, a biomarker is a biological molecule found in blood, other body fluids, or tissues that is a sign of a normal or abnormal process, or of a condition or disease. Biomarker testing is transforming prostate cancer care and treatment by providing patients and their treatment teams with a vast amount of information on the genomic mutations that drive cancer growth. The mutations and other biomarkers that are found in your tissue sample might tell your doctor if a targeted therapy or immunotherapy may work for you. » Read more about biomarkers.
(This content is provided in partnership with Foundation Medicine.)
Do you have metastatic Castration-Resistant Prostate Cancer (mCRPC)? Are you ineligible or electing not to receive treatment with chemotherapy? If so, then you may be eligible for the SPLASH clinical trial. This trial is for patients who have progressed following treatment with androgen receptor axis-targeted therapy (ARAT) and who haven't yet received chemotherapy. The SPLASH trial is now enrolling to evaluate if [Lu-177]-PNT2002, a radioligand therapy (RLT), is a safe and effective option to slow down the progression of mCPRC. More information about the trial is available on the website. » Read more.(This content is provided in partnership with POINT Biopharma.)
Experiencing Cancer-Related Anxiety?
If you are experiencing symptoms of anxiety and stress related to cancer, you may qualify for Blue Note's Restore Study. By joining this study, you will get access to a mobile-app-based investigative digital therapy over 12 weeks intended to manage cancer-related anxiety and stress symptoms. Earn up to $200 for participating. You might qualify if you have a stage I, II, or III cancer diagnosis, you have undergone treatment sometime in the last 6 months, or have planned future treatment and/or, you are experiencing cancer-related anxiety and/or stress symptoms. The Restore Study is investigating two digital therapeutics for the physical and mental health of cancer patients. » Learn more and see if you are eligible.(This content is provided in partnership with Blue Note Therapeutics, Inc.)
Have you been diagnosed with metastatic castration-sensitive prostate cancer? Do you have a DNA Damage Repair (DDR) gene alteration? You may be eligible to take part in a clinical trial studying a potential treatment for this type of cancer. The TALAPRO-3 trial is evaluating whether talazoparib (the study drug) when taken with enzalutamide, an existing approved treatment for metastatic prostate cancer, can help keep tumors under control for longer than enzalutamide taken with placebo (an inactive medication). The trial will also explore the safety of this drug combination. » Read more.(This content is provided in partnership with Pfizer Oncology.)
Help Us Better Understand Patient Needs
Researchers at Duke University are partnering with ZERO and Pfizer Oncology to better understand the needs of prostate cancer patients. Take the survey to help address possible gaps in patient education, goals for treatment, shared decision-making, and access to care. Patient insight will help build programs, develop initiatives, and improve patient access in order to produce better outcomes for all people impacted by prostate cancer. » Click Here to Take the Survey
This newsletter is brought to you in partnership with Advanced Accelerator Applications.