ZEROHour Newsletter: July 2022

New Resource for the Newly Diagnosed

A prostate cancer diagnosis can be scary and overwhelming, but with the right educational resources, you can empower yourself with the knowledge to take on your fight and make informed decisions on your treatment and care.

Download the new, FREE, 36-page Newly Diagnosed Prostate Cancer Guide that includes information on diagnosis, stages, imaging, genetic testing, biomarkers, treatment options, clinical trials, healthcare teams, managing side effects, and much more.

Shelby Moneer, VP, Patient Programs and Education at ZERO says, “This important guide has been available in the past, and now has some exciting new updates, including questions to ask your doctor, new resources and information on treatment, getting second opinions, and more. This is a powerful tool and will be a great tool for those newly diagnosed with prostate cancer."

You can access the guide at the link below.

Register for a ZERO Run/Walk in Your Community

Registration is open for the 2022 ZERO Prostate Cancer Run/Walk series. Sign up for one of the in-person events that are currently scheduled all over the country this Summer and Fall. There is no cost to attend. You will love the support and camaraderie that you will find at these events. All funds raised will go to help patients and families in need. Nine Spring Run/Walk events took place in May and June. 1,880 participants helped raise more than $425,000!

Following is a list of upcoming ZERO Run/Walk events in August:

Saturday, August 6, 7:30 a.m. Central Time
Omaha, NE Run/Walk
Register

Saturday, August 20, 9:00 a.m. Eastern Time
Lehigh Valley, PA Run/Walk
Register

Saturday, August 20, 9:00 a.m. Eastern Time
Cleveland, OH Run/Walk
Register

Sunday, August 28, 8:30 a.m. Eastern Time
Morgantown, WV Run/Walk
Register

It takes a lot of passionate people to make the Run/Walks happen. CLICK HERE for information on how you can volunteer to help at any of the Run/Walk events.

Join a Webinar or Online Event

July 20, 6:00 p.m. Eastern Time
Genetics Town Hall
Presented in partnership with Myriad Genetics and the PROMISE Study Registry
Register

July 21, 6:00 p.m. Eastern Time
Us TOO Support Group Meeting
in Person at Doctors Hospital in Sarasota, FL and on Zoom
Join via Zoom on July 21, 6:00 p.m. Eastern Time

July 27, 6:30 p.m. Eastern Time
Prostate Cancer and the Unique Needs of the LGBTQIA+ Community
with Dr. Anne Katz, Certified Sexuality Counselor and Clinical Nurse Specialist at CancerCare Manitoba
Register

July 28, 7:00 p.m. Pacific Time
Making Peace with Anxiety
(Perspectives from a Cancer Survivor)
Presented by Prostate Forum of Orange County
with Sarah Fenlon-Falk, LCSW, Sarah Falk Coaching and Consulting
Email to register

Video is now available for past events you may have missed:

Prostate Health: Early Detection, Treatment, and Resources
with Dr. Alexander Engelman, Medical Director of Radiation Oncology at Florida Urology Partners
Presented in partnership with Florida Urology Partners, LLP, Tampa General Hospital Cancer Institute, and Janssen
View the video

Genetic Testing in Prostate Cancer
with Rob Finch, Director of Urology Medical Affairs, Myriad Genetic Laboratories
Presented in partnership with Myriad Genetics
View the video

Precision Medicine and the Future of Prostate Cancer Treatment
with Dr. Kerry Schaffer, Assistant Professor, Hematology/Oncology, Vanderbilt School of Medicine
Presented in partnership with POINT Biopharma
View the video

A Special Two Part Series to Help You Reduce the Impact of Treatment Side Effects:

Signs, Symptoms, and Treatment Options for Erectile Dysfunction and Incontinence (Part 1 of 2)
with Dr. Michael Granieri, Urologist, Conrad Pearson Clinic
View the video

Prostate Cancer Treatment Options and Risk Mitigation for Radiation Therapy (Part 2 of 2)
with Dr. Albert Chang, Radiation Oncologist, UCLA Health
View the video

Presented in partnership with Boston Scientific

Want to know which prostate cancer support and education events are happening this month? Check the Prostate Cancer Calendar web page, a resource for the entire prostate cancer community. If you have a support group, webinar, seminar, or other prostate cancer event that will benefit the community, you can post it right to the calendar.

Advocacy in Action

Are you interested in striking out on your own to advocate for prostate cancer? Do you want to take your advocacy into your own hands and make it a year-round activity? During the month of August, Congress is in recess, meaning that every Member of Congress will be in their home district. This is a perfect opportunity to reach out on your own to schedule a meeting with your representative about prostate cancer and how they can do more to promote funding and awareness. Join us for a webinar on August 3 at 1:00 p.m. Eastern. Susan Sweat from Cornerstone Government Affairs, and Ali Manson and Hal Berger from ZERO’s advocacy team will provide you with the necessary tools to schedule and conduct your own meetings in your own backyard.

Grow & Give for Prostate Cancer Awareness

Registration is now open for Grow & Give, a nationwide fundraising and awareness campaign to ZERO out prostate cancer by growing facial hair or rocking a boldly blue style in November. You can participate in Grow & Give by changing up your look, hosting an event, getting your company involved or putting your unique interests to work. Whatever floats your boat. The important part is raising critical funds for those affected by prostate cancer. We give you the tools, and the rest is up to you!

Get Between the Sheets

The bi-monthly Between the Sheets column provides a platform to help men and women by providing answers to questions about sexual health and intimacy challenges that can result from prostate cancer treatment. In this issue, Dr. Anne Katz, Certified Sexuality Counselor and Clinical Nurse Specialist at CancerCare Manitoba, addresses a question from a gay man who has concerns about erectile dysfunction related to surgery.

Progress in Prostate Cancer Research

Progress in Prostate Cancer Research is a ZEROHour feature that includes some of the latest research from the Prostate Cancer Foundation (PCF). This month’s column addresses doublet and triplet treatment intensification for those with metastatic hormone-sensitive prostate cancer (mHSPC).

Read Doc Moyad’s “No Bogus Science” Column

For over 15 years and almost 200 consecutive columns, Dr. Mark A. Moyad of University of Michigan Medical Center, Department of Urology has offered practical advice to improve health outcomes. In the latest issue, he looks at the repurposing of some drugs that can be used for multiple purposes or benefits, including one that looks promising for both prostate cancer and COVID-19.

Tee-Off Against Prostate Cancer

Sign up to be a part of the ZERO Prostate Cancer Tee-Off. There’s no pressure to have a good golf swing, it’s all about everyone having fun. Grab a club and take a swing at the micro-chipped balls to see how many points you can rack up. All proceeds benefit prostate cancer patients and families. The Swing Fore Hope event took place on June 16 in Allen, TX. Over 100 people attended and more than $30,000 was raised. If you are in the area for either of these two upcoming Fall events, be sure to register:

October 10
14th Annual Pros4Care Golf Tournament
Brookhaven Country Club
Farmers Branch, TX
Register

October 23
Scottsdale TopGolf
Scottsdale, AZ
Register

Livestream Fundraising Opportunities

Livestreaming is an exciting new way to raise funds and awareness for prostate cancer patients in need. If you are a content creator, gamer, musician, chef, or any other kind of livestreamer, consider joining in our mission to end prostate cancer. Livestream fundraisers, Seb and Rusty of SebKnowsBest, recently hosted a 24-hour stream featuring multiple challenges that took place when donations reached various levels, including dying their hair blue, exercising, and even shaving an eyebrow. They raised over $1,600 to help fuel ZERO’s mission. You can do this too! If you have interest in running a livestream fundraiser with ZERO, please click on the link below to send an email about your idea.

COMMUNITY Support Groups ZERO’s Us TOO Prostate Cancer Support Groups meet regularly. Many of these groups meet virtually and these meetings can be accessed by phone or by internet, and can be attended from any location. Other groups are meeting in person or offer a hybrid of virtual/in-person meetings. » Find a support group. Did you know that ZERO has an Us TOO Support Group specifically to help address grief? This new group is for anyone who has lost someone to prostate cancer and who might benefit from speaking with others. Friends, family members, partners, and loved ones are welcome to join virtually the second Monday of the month at 6:30 p.m. Eastern. » Sign up for the grief support group.

CHAMPIONS CORNER Meet Bishop Eddie Wright Bishop Eddie Wright is a prostate cancer survivor who has recently been elevated to a ZERO Champion. He has been very active with ZERO over the last year. In February, Eddie put together an educational event in Dallas, TX. He also participated in this year’s ZERO Summit and the recent Mini-Hill Day. Eddie attended the Swing Fore Hope event on June 16 in Allen, TX. That event raised over $30,000 to help those affected by prostate cancer. He is currently working on putting together another event in San Antonio, TX to take place this month. Thank you to Eddie for all that you do!» Learn about ZERO Champions.

CLINICAL TRIALS SPLASH Trial Do you have metastatic Castration-Resistant Prostate Cancer (mCRPC)? Are you ineligible or electing not to receive treatment with chemotherapy? If so, then you may be eligible for the SPLASH clinical trial. This trial is for patients who have progressed following treatment with androgen receptor axis-targeted therapy (ARAT) and who haven’t yet received chemotherapy. The SPLASH trial is now enrolling to evaluate if [Lu-177]-PNT2002, a radioligand therapy (RLT), is a safe and effective option to slow down the progression of mCPRC. More information about the trial is available on the website. » Read more.(This content is provided in partnership with POINT Biopharma.)

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